Wednesday, March 28, 2012

Computer problems

I know it looks like I have been neglecting the blog lately, but regular posts were interrupted due to computer problems and migraines.

Normal posts will resume soon.

Friday, March 2, 2012

New Records

Broken records:

52: Number of times I have fainted or fallen in a single day up until Feb.
62- Number of times I have fainted or fallen in a single day- breaking previous record.

Response from specialist at large Clinic where they supposedly specialize in treatment of syncope:
 "We have no idea. Call Dr. X."
 Dr X's response: "We have no clue, please check with Dr. Z."
 Dr. Z's response, "We have no clue, Call Dr. A, and don't call us back."

I am not sure, but I think I am really baffling the medical establishment. Now, the only thing to do is to keep searching and find ways to live with it.

Living with the fainting:
Many have said that every day is an adventure.
In my case, this is true.
For I never know what the day will bring.
If it is good, i will not fall- much.
If it is bad, I fall too much and am called a "liability"
This baffles the experts.
It baffles me.
But life must go on.
For after all, I must live. I must survive.
Surviving means being cheerful, laughing when you fall,
listening to friends make bets on how often you faint.
It means listening to first graders explain to others why you sometimes fall.
It means wondering how a six-year old can understand this disease and explain it to others, and adults, who have long ago lost all innocence, refuse to understand.
It means living in spite of the fall.
For I know one day, all shall be revealed, one day, in this world, or even in the next, I  shall be free.
But until that time, I will put my faith in God to save me, in friends and family who graciously help me, and I will get up everytime I fall.

I am also really praying that I am matched with a service dog soon.

Go with God!
Sconesail