October 28, 1997
It was a beautiful fall day in Baltimore, MD. I was playing field hockey- it was the last game of the season. Suddenly, as I looked down the field, I began to see zig-zags and the other team turned into big purple spots. I knew what was happening- I was getting a migraine. I looked at the coach and she pulled me out of the game and sent in a substitute. I walked up to the infirmary to get my migraine medicine. I thought it was just another migraine and would go away in a few days or a week. I had no idea that my life was about to change forever.
I got my first migraine at age 12. The headache would last a few days or a week. I would simply take the Tylenol 3, rest, maybe miss half a day of school and then it would get better. But this one was different- it didn't go away.
On my 17th birthday, I saw my fist neurologist. He diagnosed my with migraine, prescribed Imitrex, a steroid course, and ativan for sleep. This was only the beginning.
Since that October day,
I've taken more medication than I thought possible.
Seen so many neurologists that I have lost count
Had friends drag me kicking and screaming to the ER because they couldn't stand to see me in pain.
I've been hospitalized 5 times.
I've been at seen at 4 headache clinics.
Seen some of the top neurologist in the country
Graduated college and high school on time- (something several doctors told me would never happen.)
had 2 radiofrequency procedures
had an occipital nerve stimulator implanted and have had 4 revisions.
learned that college students will do anything for food. (If you can take me to the doctor, I'll buy you dinner.
I've mastered bribery.
I've mastered the art of faking it until you make it.
Shortly after the headache began, my mother said, "Take the meds, put on the dress and smile/" This has become my motto.
I've had a friend draw a military plan to get me to the dr.
Navigated the intricacies of the medical world.
Learned the meaning of true friendship.
Had several rounds of botox
More IVs than most have in a lifetime
learned that faith and a positive attitude are great assets.
-justified purchases by thinking- well, the book will help and it is cheaper than an ER visit.
-connected with so many people fighting this disease.
I've learned to keep fighting.
This disease has changed me, but I've also learned things in the process.I've learned that true firends are rare and treasured-these friends will drag you a doctor, distract you and be with you even in your darkest hour. I've also been able to connect with others who fight this every day. I've learned to fight this disease. It is a part of me, and even if I sometimes lose the battle, I know that one day, I will win the war.
Most importantly, I've learned not to give up.
