Adventures in Falling: Call for Submissions!

Thursday, September 6, 2012

Call for Submissions!

I am hosting the September Headache and Migraine Blog Carnival. The topic is Talking About Migraine: How do you talk to the people in your life about migraine disease? How open are you? What do you share and what do you keep to yourself and why?

Entries are due tomorrow at midnight.

The carnival will be posted here on Tuesday.

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What is New Daily Persistent Headache?

I got my first migraine at the age of 12, but they did not become chronic until age 17. New Daily Persistent Headache occurs when a headache develops spontaneously and is unremitting. The main characteristics of NDPH include the following:

- The Headache is daily from the moment of onset. In fact, many people with NDPH can remember exactly where they were and what they were doing when the headache hit.

-Contrary to popular belief, there are two froms of NDPH- a self limited forn which lasts for a few months and goes away without treatment. There is also a refractory form of NDPH. This form is extremely difficult to treat as it does not respond well to the normal migraine medications.

Criteria for diagnosis include the following:

-daily pain must be present for more than two months.

-Unlike normal migraines, which are often one sided, NDPH is typically bilateral- meaning that pain is felt in the whole head.

-Nausea, sensitivity to light and sound, and lightheadness are also present.

It is extremely refractory to treatment.

Note- all the above information comes from the folliwng link;

http://www.mhni.com/faqs_ndph.aspx#symptoms

Other information about NDPH can be found in the links section.

What is Neurocardiogenic Syncope?

I have Neurocardiogenic Syncope, a form of dysautonomia. This began about 3 years ago after a bad bout with the flu. I recovered from the flu, but began to faint constantly- at first, only a few times a week, then once or twice a day, and finally multiple times a day- anywhere from 1-12 times on a given day,
NeuroCardiogenic Syncope occurs due to a "disconnect" in the brain. In a normal individual, blood pressure rises upon standing. In patients with Neurocardiogenic Syncope, the heart does not get the message to raise the blood pressure when needed, as a result, the heart rate increases and blood pressure drops. In order to protect the brain, you faint in order to re-establish blood flow to the brain. The symptoms resolve quickly. There is not a great deal known about this disease, but advances are being made all the time. again, I have seen numerous doctors- cardiologists, neurologists etc. The one thing that has helped most has been C-PAP at night.

Helpful Links are listed in the blog section.

Adventures in Falling

Thursday, September 6, 2012

Call for Submissions!

No comments:

Post a Comment

What is New Daily Persistent Headache?

What is Neurocardiogenic Syncope?

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