Adventures in Falling: Moving

Sunday, September 25, 2011

Moving

I realize that I haven't been posting as much lately. There has just been a lot going on in my life- most of it good. I have been in the middle of moving, adjusting to more independence, and dealing with the post-move migraine.

I also want to remind you that I am hosting the October edition of the Migraine and Headache Blog Carnival. The topic is "What is the scariest migraine experience you have had or even witnessed?' Please email all submissions to somebodyhealme@dianalee.net by midnight on Oct. 7.

I look forward to reading them.

1 comment:

Diana LeeSeptember 25, 2011 at 1:28 PM
Glad to hear you've been busy with good things! That's always a nice treat when you're dealing with chronic pain. :)
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What is New Daily Persistent Headache?

I got my first migraine at the age of 12, but they did not become chronic until age 17. New Daily Persistent Headache occurs when a headache develops spontaneously and is unremitting. The main characteristics of NDPH include the following:

- The Headache is daily from the moment of onset. In fact, many people with NDPH can remember exactly where they were and what they were doing when the headache hit.

-Contrary to popular belief, there are two froms of NDPH- a self limited forn which lasts for a few months and goes away without treatment. There is also a refractory form of NDPH. This form is extremely difficult to treat as it does not respond well to the normal migraine medications.

Criteria for diagnosis include the following:

-daily pain must be present for more than two months.

-Unlike normal migraines, which are often one sided, NDPH is typically bilateral- meaning that pain is felt in the whole head.

-Nausea, sensitivity to light and sound, and lightheadness are also present.

It is extremely refractory to treatment.

Note- all the above information comes from the folliwng link;

http://www.mhni.com/faqs_ndph.aspx#symptoms

Other information about NDPH can be found in the links section.

What is Neurocardiogenic Syncope?

I have Neurocardiogenic Syncope, a form of dysautonomia. This began about 3 years ago after a bad bout with the flu. I recovered from the flu, but began to faint constantly- at first, only a few times a week, then once or twice a day, and finally multiple times a day- anywhere from 1-12 times on a given day,
NeuroCardiogenic Syncope occurs due to a "disconnect" in the brain. In a normal individual, blood pressure rises upon standing. In patients with Neurocardiogenic Syncope, the heart does not get the message to raise the blood pressure when needed, as a result, the heart rate increases and blood pressure drops. In order to protect the brain, you faint in order to re-establish blood flow to the brain. The symptoms resolve quickly. There is not a great deal known about this disease, but advances are being made all the time. again, I have seen numerous doctors- cardiologists, neurologists etc. The one thing that has helped most has been C-PAP at night.

Helpful Links are listed in the blog section.

Adventures in Falling

Sunday, September 25, 2011

Moving

1 comment:

What is New Daily Persistent Headache?

What is Neurocardiogenic Syncope?

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